The National Registry of Orthopedic Interventions (LROI) wants to make its data on various orthopedic treatments available for scientific research in a privacy-friendly manner. To this end, the LROI is collaborating with Bluegen.ai, which converts the pseudonymized data in the registry into synthetic data. This makes the personal data used even less traceable, without compromising the validity of the research. The jury of the Dutch Privacy Awards appreciates the responsibility that the LROI feels for the personal data in its care and the course it has chosen to take. The jury therefore nominates the National Registry of Orthopedic Interventions and Bluegen.ai for the Privacy Awards.
Quality registries such as the National Registry for Orthopedic Interventions (LROI) play an important role in monitoring the quality of care and also contribute to cost savings in healthcare. This is done using patient data that must comply with strict privacy rules. To take the privacy of patient data to an even higher level, the LROI uses artificial data for the demonstration dashboard and scientific research.
The reason for this was to protect patient privacy as much as possible while maintaining the use of data in the dashboard or for scientific research into improving orthopedic care.
Applying artificial data to improve the privacy of patient data for the demonstration dashboard and science. This allows the options of the quality dashboard to be demonstrated based on artificial data, thereby guaranteeing the privacy of patients and hospitals. Researchers can now also work exclusively with artificial data, which creates new opportunities.
Creating artificial data based on LROI data comes with unique challenges, including relatively rare outcomes such as revision of joint prostheses. For scientific research with artificial data, it is also necessary that the results are virtually identical to those obtained with real data, while maintaining privacy.
In the coming period, we will jointly write scientific papers that will further promote adoption. There is sufficient support for this, partly because this way of working makes it possible to continue conducting scientific research using data from the LROI under the new WKKGZ Act.
